I'll never capitalize cancer

I have alot going on in my life, more than just cancer and chemo. Sure it's a big part of my life right now, but it's not the most important part of my life. You will never see me spell it with a capital "c".

I'm a Wife and Mom. I love my Family. I have good Friends. We do fun stuff and dumb stuff and sometimes we argue and then we laugh again. We go to work and to the grocery store and we go swimming and have birthday parties and get ready for the first day of school.

I keep saying that I don't want ovarian cancer to define me, but sometimes I just can't help it.

A good friend put it this way for me "cancer may be defining your life for the moment, but it is not your entire life. You seem to just make time for it." That made me feel better.

If you want to see it from the beginning, my cancer story begins in March.

The rest of my story is happening now.
Showing posts with label Julie and Ben Rogers Cancer Institute. Show all posts
Showing posts with label Julie and Ben Rogers Cancer Institute. Show all posts

Thursday, September 3, 2009

The Latest on the cancer Saga

Again, I have not been a good Blogger, but I can cut & paste what others have written. Here is the latest email update from my Husband Brian:

Since I sent the picture, I thought I'd better bring you all up to speed on her prognosis.
Teresa had what hopefully will be her LAST chemo treatment last week.
She had an allergic reaction and had to deal with hives that day. And she was out of it all weekend.
But she's back to her old, energetic self, (I get tired watching her buzz around) and all is good.
We go to MD Anderson in two and a half weeks for a checkup to make sure the cancer cells are gone.
Then it's every six months.
With Abrianna finally starting real school, kindergarten, I need her at her top speed. ;-)
Hope all is well with all of you.
Thanks again for your good thoughts and prayers.
Brian

Thursday, May 14, 2009

Feeling Great!

It has been a while since I updated this, so here is a quick post.

I had my 3rd chemo treatment Wed and things went smoothly, kinda becoming a routine now. I am feeling fine, no nausea. Went to Abby's Field Day today and am finishing up getting things together for my garage sale this weekend.

I have been planning this garage sale for probably a year now. I can't belive how much stuff we have in boxes that we had forgotten about. Baby girl to 4 toddler all going to a new home for someone else to love on.

Good news from my Doctors last week. I was having one of my "Oh, woe is me" days. I told Dr Schmeler at MD Anderson that I wanted to teach my daughter to ski and take her on a cruise on the Big Red Boat and I was worried I was not to going to be around to do either. She told me to go ahead and plan on going skiing next Spring but I should wait until next Summer to take the cruise. And to quit reading the magazines in the waiting room.

Dr Lavalais at the Julie & Ben Rogers Cancer Center here in Beaumont told me that my blood tests were looking good. Especially the CA 125, which is a tumor marker. Normal people who do not have cancer will have a test number of about 30. When I started chemo, my number was 365, now it is 81. That means that the cancer cells are not reproducing as rapidly and are not producing the fluid that was causing problems before. Also, my cysts and other stuff (tech term) are shrinking. Mostly it means that I am having a positive response to the chemo therapy.

Other things keeping me busy - Abby's end of the year school programs and rehearsals for her upcoming dance recital. And we are getting a ton of mail. The bills are coming in and I have to be sure that we keep it straight. I am filling out aps for financial assistance and arranging payment plans.

Keeping my calendar is really important now. Drs appts, rehearsal schedule, payment deadlines, playdates and family visits ...

To add to it, there is a condition called "chemo brain" where you tend to lose focus and forget things. Yes, even more than usual!

That's the quickie version. Thanks again to everyone who has been checking in and keeping in touch. Give me a few days after the garage sale and I will try to have more and include some pics.

Thursday, April 23, 2009

My Second Cycle of Chemotherapy

Dad came in from Dallas last night. Just in case you are looking, we found that the new Ramada Inn at I10 & College is clean, safe, quiet, has a pool, a gym, FREE breakfast & WiFi, and is convenient to our Home and the Hospital, and they gave us a great rate. Oh and here's a bonus, it's right next door to the Harley Davidson store.

He came to spend a few days with us and to sit with me today at the Julie & Ben Rogers Cancer Institute while I had my chemotherapy. It was a long day, but I am glad he's here.

I wasn't sure if I would be. I mean, it's not going to be a fun weekend. I'm losing my hair, I've lost alot of weight, we spent all day sitting in a room full off sick people and IV's, and it is possible that I will be throwing up all day Friday. We did get to watch some interesting videos about chemotherapy and cancer. And they fed us lunch.

Abby was in school for most of the day and my dear friend Whitney brought Abby home to play with her son till Brian could pick her up. She also fixed up some homemade chicken soup to send home with Brian.

I'm a little tired.

Dad was OK during the chemo. He got to see why I think that my oncology Nurse, Pam, is just the best. She totally knows what she's doing and explains everything as it is happening and the sticks hardly hurt. (I am fortunate that I have not had to have a medi port, today they just stuck it in the other arm) Since his heart attack and quintuple bypass, rotator cuff surgery, skin cancer and hip replacement, I think Dad has become pretty familiar with hospital stuff. And I think that if you talk about it all in technical terms, it's almost like it's not really happening right there in front of you - or to you.

Dad had his Iphone and a USA Today, I had my cel phone, my calendar & my List and a magazine. We talked in between. Anyone else notice the big elephant in the room? Dad had loaded up some special tunes for me on the Iphone and I listened to ABBA through his very cool Bose headphones.

Dr Lavalais changed my before & after meds to help control my nausea. Last time I didn't get sick until the next day, so she prescribed something that has a longer half life.

Have I mentioned how wonderful the people at the Cancer Institute are? Dr Lavalais is brilliant, and Pam is way more than capable and calm and friendly. Everyone - the RN's, the LVN's, the Aides, the Receptionist even the billing office when they call are very considerate and helpful.


Afterwards, we went to the drug store to pick up my Zofran ODT, picked out a gift for the Birthday party that Abby has been invited to and showed Dad where the Bounce Zone is so that he can take her to the party. Now we're ready for a big high calorie, high protein no sugar added Smoothie King. Then we went home for a rest before Brian's fantastic dinner.

Today was fine afterall, considering. Dad told me not to worry, he came here for just one reason - to give me a big hug and make sure that I am doing OK.

Tomorrow morning I go back to get the infamous $9000 shot! Neulasta helps my bone marrow stimulate white blood cells. Sure, why not? What's another $9000?


Then Abby will get to spend the rest of the day with Granpa.

Tuesday, April 14, 2009

Such a Good Day

The weather is fabulous and that certainly helps. I am feeling better than I felt before I started my chemo. I still have to take my painkillers, but the swelling from the excess fluid in my abdomen has gone down, feels like my cyst and enlarged uterus & ovaries are down, I don't have the shortness of breath from having fluid in my lungs, and I'm hungry and eating and have so much more energy.

It has been such a good day that I didn't even mind getting pulled over by the Policeman this morning. It was a goober thing to get pulled over for. He was on a motorcycle and when I turned past him, I could tell he was taking a good long look. I thought maybe it was because I was drinking and driving. I had a
Shake and was turning the steering wheel with just one hand. NOOOO, it was my inspection sticker! Hmm so that's 09/08, not 08/09? And of course I had cleaned out my purse so that I could carry Easter eggs this weekend, which means that I had taken out my BIG wallet, the one that has the proof of insurance... At least I wasn't speeding!

Not a problem, it still is a fabulous day!

Continuing on to the
Julie & Ben Rogers Cancer Institute to get some blood drawn. This is what I now know to be called my "labs". I will be getting them every week while I am having my chemotherapy. It doesn't take long. Parking is easy (it's Beaumont) I check in, they draw 2 vials... "Hello Mrs Burns" "Hi Mrs Burns" "How're you doing today Mrs Burns?" "Right this way Mrs Burns" "Your haircut is really cute Mrs Burns".

I don't want to be part of this club, but they sure are friendly.

"Don't worry this won't a bit" "Make a fist and squeeze".

Quick and easy. Now I need to go get my car inspected. I also need an oil change and a car wash so I can just get it all done in one place. Cross a few more things off my List, pick Abby up from school, have a snack, throw in some laundry, Brian's home.

"How was your day?" "What did you do in school?"

Today was Abby's day for Show & Tell, and the letter of the week is "W". We had gathered up a bunch of things that start with "W" and put them in the big Show & Tell container for her to take this morning. Sometimes you have to be creative - wig, a tiny wagon, a piece of watermelon in a zip loc, wood, wool scarf, t-shirt with a picture of a witch, whale, a picture of a web, wallet, Ariel in a wedding dress, watch, gummy worms, etc.


And, Abby is the leader this week. Which mean that she gets to be in the front of the line and lead the class whenever they go to a new activity.

Time for bed. Flossing, brushing, flouride rinsing, potty, 2 stories, prayers.

This was such a good day!